Category Archives: Industry Related

index

Private cancer therapy ‘crowdfunding rise’

There has been a big leap in the number of cancer patients turning to crowdfunding to pay for treatments not available on the NHS, figures seen by BBC Radio 5 live suggest.

Data from JustGiving shows that 2,348 appeals were set up by cancer patients or their loved ones in 2016, a seven-fold rise on the number for 2015.

Over £4.5m was raised by these appeals in 2016 compared with £530,000 in 2015.

Doctors say the number of patients bypassing the NHS is “very worrying”.

‘Strength and generosity’

Liz Sheppard, a mother-of-three from Mansfield, was diagnosed with small cell stomach cancer – a rare form of the disease – in November 2015.

She has now raised over £135,000 online to help pay for immunotherapy, which she is receiving at a private centre in London.

She has already spent around £60,000 of the money on immunotherapy, and says she is responding well to the treatment.

She told the BBC: “I’m able to get out and lead as normal a life as possible. Certainly I’m not bedridden.

“If it wasn’t for people’s generosity and kindness, I wouldn’t be where I am now. It’s not something I could have self-funded. Without that money I wouldn’t be here. It means everything.

“I’m a mother. I look at my children every day and they keep me going.

“And the messages people leave when they make a donation can be motivating in themselves. You can draw a lot of strength from them.”

A spokesman for NHS England said: “More people than ever before are surviving cancer thanks to improved NHS care… and together with NICE (the National Institute for Health and Care Excellence) we have also launched a new-look cancer drugs fund, meaning patients will be able to access promising, new and innovative treatments much quicker.”

According to the detailed figures released by the platform JustGiving, USA, Germany and Mexico topped the most popular destinations for patients travelling abroad for treatments last year.

More than a fifth of those looking for treatment (404 people) raised £1,393,490 in donations to travel to the United States for care.

Germany followed in second place with 142 people crowdfunding £368,530 (a 461% increase from 2015), whilst 23 people raised £69,660 to travel to Mexico for treatment (a 224% increase from 2015).

Immunotherapy was the most popular treatment crowdfunded on the JustGiving platform in 2016.

The therapy uses the body’s own immune system to fight off cancer. It has been shown to work in certain cases, but not all. And some are still in the very early stages of research.

The treatments people have funded are not always considered to have the backing of sufficient scientific evidence by NHS experts.

Charles Wells, chief operations officer for JustGiving, said: “Over the last 12 months, we’ve seen more and more people crowdfunding on JustGiving to raise money for cancer treatments that aren’t available on the NHS.

“It can be a practical way for friends, family and the community to come together and help, as well as providing a lifeline for people by giving them access to pioneering treatments when they’ve been given a cancer diagnosis.”

‘Funding pressures’

Consultant oncologist Dr Clive Peedell expressed concern about the rise in the number of patients bypassing the NHS to fund their own treatment.

He told BBC Radio 5 live: “The NHS is clearly financially under pressure at present, but cancer therapy has received preferential funding compared with other diseases and conditions.

“The system for approving effective new cancer drugs is not perfect, but is much improved.

“The vast majority of proven effective treatments for cancer are funded by the NHS.

“This includes immunotherapy for a number of indications including lung cancer, which is my own field.

“However, funding pressures are likely to pressurise the current system even further and we could see it break down in future.

“It is therefore very worrying to see this trend of crowdfunding for cancer drugs.

“It would be interesting to review all the cases to find out how many are genuinely appropriate.

“I worry that some patients may be trying to access treatment that may not be beneficial.

“Worse still, there may be significant extra costs involved, especially if patients pay privately or travel abroad.”

The NHS England spokesman said it was investing £130m in state-of-the-art radiotherapy equipment, alongside £200m of funding over two years to improve local cancer services.

Source BBC News

 

Nurses in Britain spend an estimated 2.5 million hours a week on “non-essential” paperwork – Planning for Care Can Help

Britain’s nurses spend an estimated 2.5 million hours a week on ‘non-essential’ paperwork and clerical tasks, according to research.

The Royal College of Nursing believes nurses are burdened with too much paperwork and too many targets.

I think every nurse would support that belief.

The view adopted by the inspectors and auditors appears to be ‘if it’s not written down, it’s not happening.’

In reality, there can be a well written Care Plan but the quality of care might bear no resemblance to what is set out within the Care Plan.

Nurses would much rather spend their time caring for patients or residents than completing paperwork such as care plans.

Unless nurses are producing excellent Care Plans, Care Home grades will suffer.

30 years ago written Care Plans did not exist, but the care delivered was, in the main, excellent.

Perhaps this was because nurses did not have to spend much of their time producing the volume of paperwork that is necessary today.

I do very much believe in the benefit of care plans today.

It is the way forward and if written well, can really have the capacity to have a substantial effect and improve the quality of care.

Documentation is a crucial aspect of care, which facilitates the continuity of care and it forms an accurate record of care provided. It is now vitally important that the quality of resident’s care and nursing documentation is of the highest standard.

A good system of Care Planning undoubtedly can help the nurses and carers complete the paperwork far quicker and more comprehensively.

A system of personalising care planning for the elderly, which Planning for Care provides, can vastly improve the delivery of care and help Care Homes improve the grading they are awarded by the Care Inspectorate by helping them meet their regulatory requirements.

“The challenges facing everyone in the care sector are growing exponentially with constant changes in law, increased regulation and the potential threat of litigation.”

The focus on nursing appears to have changed and, instead of it being a wonderful, satisfying and fulfilling occupation, it is now very much a race against time.

It is in everyone’s interest that the standards of care improve.

The National Health Service is such a wonderful institution and it has to survive and flourish.

Progress is a great thing, but there needs to be a balance to ensure there is no deterioration in the very core standards and values of nursing. We need to rethink the path we are taking.

The days of placing massive importance on positioning each pillow case with the closed end facing the entrance door of the ward have gone!

But was it really such a pointless exercise?

In those days every nurse knew every detail about every patient, and every aspect of patient care was delivered with precision and thought.

Patient care may have been delivered in a task orientated way, but attention to detail was everything.

The pride nurses had in their job was tangible.

A mixture of the nursing cultures of yesteryear and today is, I think, needed to help elevate nursing to the high standard of profession it should be.

Elderly ‘reluctant to complain’ over health care

Elderly people are reluctant to make complaints about poor health care or do not know how to, the Parliamentary and Health Service Ombudsman says.
A report suggested 56% of people aged over 65 who experienced a problem did not complain because of worries about how it might impact future treatment.
Nearly 20% did not know how to raise a complaint, it said, while a third felt complaining would make no difference.
Ombudsman Julie Mellor said it could mean some are “suffering in silence”.
That could “lead to missed opportunities to improve the service for others”, she added.
The research involved a national survey of almost 700 people over the age of 65, as well as focus groups and case studies.
‘Proactive approach’
One carer in Manchester told authors: “When people have a problem they don’t know where to go; they are referred to a computer which they don’t have; they are referred to a library which is too far away to get to… (and) they wouldn’t know what to do anyway.”
The report recommended a more proactive approach from NHS providers, saying they should make sure all users know how to complain and are reassured there will not be repercussions.
It said progress had been made, including through steps by the government to explore a new streamlined public ombudsman service to handle complaints.
But Age UK said the research was a cause for concern.
Charity director Caroline Abrahams said: “Seeking and responding to older people’s views and experiences is crucial if we are to prevent future care scandals like those that have too often blighted our hospitals and care homes in recent years.”
Healthwatch England said a universal, independent complaints advocacy service that was easy to find and simple to use would improve the situation.
A spokesman said: “We know the NHS is under pressure at this time of year, it is therefore vital that if things do go wrong patients are informed how to raise concerns and how to get help to do so if they need it.
“Without this support, thousands of incidents will continue to go under the radar every year and mistakes will never be learnt from.”
Source BBC News

NHS ‘TripAdvisor’ to let families check care home quality: Site will allow reviews from other families and show ratings that inspectors have given

Families will be able to check the safety and quality of every care home in the country on a new TripAdvisor-style website run by the NHS.
They will be able to see if homes have been rated good or inadequate by inspectors and read critical reviews from other relatives.
The site is being launched by the Government amid concern that as many as a third of care homes in England fail to meet basic standards.
At the worst, inspectors have found patients calling for help, left severely dehydrated or with ‘worrying’ bruises.
From today, the details of all 17,000 care homes in England will be published on a section of the NHS Choices website.
Each will have an overall rating of outstanding down to inadequate, based on the most recent inspection by the Care Quality Commission.
But relatives will also be able to award their own scores out of five and write reviews, similar to those on the TripAdvisor website for hotels and restaurants.
There will be nothing to stop care home managers giving themselves glowing reviews under the guise of members of the public. Staff or relatives with a grudge against a home could also post bad reviews unfairly.
However, officials at the Department of Health say comments will be checked before they go online to ensure they are not offensive and the website will be constantly monitored.
Ministers hope the site will drive up standards by encouraging the worst-rated homes to improve, or relatives will be unlikely to choose them.
 The Mail has repeatedly exposed failings in residential care as part of our Dignity for the Elderly campaign.
Health minister Alistair Burt said: ‘This is a victory for those who are worried about care. With a click of a button, the public will be able to make an informed choice about care.
‘This data will show clearly the difference in quality across care homes and will help drive up standards by highlighting poor performers, which will mean they have to shape up their services or lose out.’
The Government claims the website will make England the first country in the world to provide families with so much information about care homes.
Figures from the CQC show 36 per cent of residential care homes inspected so far have been graded as inadequate or requiring improvement.
The situation is even worse for nursing homes caring for frailer patients, with 55 per cent deemed inadequate or requiring improvement based on recent inspections.
The CQC’s chief inspector of adult social care, Andrea Sutcliffe, has admitted that ‘week in, week out, our inspectors discover some truly awful care’. At the worst homes, they have found residents with ‘worrying bruises’ or dementia sufferers with ‘malnutrition or life-threatening dehydration’.
In an interview earlier this year, she said there was a ‘shocking lack of respect for people’s dignity’ in the worst homes.
‘Sometimes it is abuse – older people treated roughly, worrying bruises that have no explanation,’ she said. ‘Sometimes it is neglect …It can all add up to a thoroughly miserable and frightening experience for people often in the most vulnerable of circumstances.’
At one, the Old Village School Nursing Home in Bedfordshire, inspectors uncovered such appalling neglect they sought a court order to close it immediately. But this was granted only at 5pm and some frail residents were still being moved out on to the street in wheelchairs at midnight before being transferred.
The new website will also state the hygiene rating of homes, based on inspections by the Food Standards Agency, and the number of beds.
It will give the staff turnover, as a percentage of those who left in the last year, and whether there is a registered manager.
Beth Britton, a campaigner whose father spent nine years in care homes after being diagnosed with dementia, said: ‘Anything that helps families to be more informed when making these decisions is to be welcomed.
‘I very much hope this new resource will provide more transparency about quality of care and give families increased insight at what is a hugely challenging time.’
Source Mail Online

Alzheimer’s charities expect 60 per cent rise in calls after Christmas

Alzheimer’s charities are expecting a 60 per cent rise in calls after Christmas as families who rarely see elderly relatives finally notice signs of dementia.
Figures from the Alzheimer’s Society show that January is the busiest month for enquiries, with a surge in calls after the festive season.
The charity said families often contacted them in January after spending time with elderly relatives over Christmas, and noticing worrying symptoms which could signal dementia.
The statistics show that last year there was a 60 per cent leap in call numbers between December and January.
The month is the busiest month by far for calls, with 5,600 enquiries received last January, plus a significant rise in online research.
Experts said families often feared dementia when in fact the changes they noticed – such as occasionally forgetting names, or why they had entered a room, could be put down to old age.
Other possible signs of dementia – such as losing interest in things, or repetitive and obsessive behaviour, were often missed, the charity said.
Jeremy Hughes, the charity’s chief executive, said: “We know dementia is the most feared illness for many, and there’s no question that it can have a devastating impact on people, their family and friends.
“It’s important we tackle confusion around what are and aren’t signs of dementia, and help give people confidence in approaching loved ones about their concerns so people don’t delay getting help.”
A survey of 4,000 people found 72 per cent did recognise that repeatedly forgetting names of family members and everyday objects could be a sign of dementia.
But nearly two thirds also thought putting everyday objects in the wrong place, such as a mug of tea in the cupboard could mean someone has dementia.
The charity said such absent- minded mistakes are relatively common.
Confusion about the order in which day to day tasks are carried out – such as the order in which to make a cup of tea – was more likely to indicate dementia, experts said.
Four in 10 people thought that forgetting why they have walked into a room might be a sign, which the charity said could happen to anyone.
Experts said a more worrying symptom would be if the room itself seemed unfamiliar. Only four in ten people felt compulsive or repetitive behaviour could be a sign of dementia.
However, a change in behaviour showing repetitive, compulsive or ritualised behaviours, which can include repeated use of phrases or gestures, or repeatedly asking the same question, can be a sign of dementia.
The charity said occasionally forgetting the name of a person, thing or place was unlikely to mean dementia and more likely to be a product of an ageing memory.
Signs of dementia which are not well-known include mispronouncing words or stuttering, and losing an interest in things you once enjoyed.
A smaller survey of people affected by dementia showed that over half waited at least six to twelve months after noticing dementia symptoms before seeking help.
Source The Telegraph

Dine with Dignity – Fantastic New Product

Dine with Dignity has created an adult bib which can make dining stress free, for people who have difficulty eating, or people with a disability and where spillages can be a problem.

Eating, and the enjoyment of food and drink, is and always should be one of life’s pleasures.

However, for some elderly people, or people with a disability, it can become a daily challenge.

Dine with Dignity has been created to meet a real need in the care sector.
To purchase a Dine with Dignity Apron click here to visit the Buy Now page.

Many medical conditions can cause difficulty with the physical act of eating, cutting food into bite-sized pieces, holding cutlery, and successfully getting food from a plate into the mouth.

Drinking can be equally as challenging. It is so important to ensure that the experience of eating and drinking is a pleasurable one and that all issues are addressed in as dignified way as possible.

Take the stress from dining

  • Protect clothing from spillages
  • Save carers time
  • The adult bibs are made of 6oz double layer polycotton
  • Absorbent
  • Washable

‘Almost too late’: fears of global superbug crisis in wake of antibiotic misuse

It is “almost too late” to stop a global superbug crisis caused by the misuse of antibiotics, a leading expert has warned.

Scientists have a “50-50” chance of salvaging existing antibiotics from bacteria which has become resistant to its effects, according to Dr David Brown.

The director at Antibiotic Research UK, whose discoveries helped make more than £20bn ($30bn) in pharmaceutical sales, said efforts to find new antibiotics are “totally failing” despite significant investment and research.

It comes after a gene was discovered which makes infectious bacteria resistant to the last line of antibiotic defence, colistin (polymyxins).

The resistance to the colistin antibiotic is considered to be a “major step” towards completely untreatable infections and has been found in pigs and humans in England and Wales.

Public Health England said the risk posed to humans by the mcr-1 gene was “low” but was being monitored closely.

Performing surgery, treating infections and even travelling abroad safely all rely to some extent on access to effective antibiotics.

It is feared the crisis could further penetrate Europe as displaced migrants enter from a war-torn Middle East, where countries such as Syria have increasing levels of antibiotic resistance.

Dr Brown told said: “It is almost too late. We needed to start research 10 years ago and we still have no global monitoring system in place.

“The issue is people have tried to find new antibiotics but it is totally failing – there has been no new chemical class of drug to treat gram-negative infections for more than 40 years.

“I think we have got a 50-50 chance of salvaging the most important antibiotics but we need to stop agriculture from ruining it again.”

Resistance is thought to have grown due to colistin being heavily used in pockets of the agricultural industries, particularly in China, often to increase the physical size of livestock.

Worldwide, the demand for colistin in agriculture was expected to reach almost 12,000 tonnes per year by the end of this year, rising to 16,500 tonnes by 2021.

In the UK, nearly half of all antibiotics used are in farming, according to reports, although the use of it as a growth agent has been banned in the EU since 2006.

The unnecessary prescription and use of antibiotics as a form of treatment is also believed to be an aggravating factor.

Although the imminent threat of the resistant bacteria spreading throughout the UK remains small, it could worsen in Europe next year, Dr Brown added.

He said: “In 2016, a number of factors are going to come together – including the effects of the migration crisis.

“I think, for the time being, northern Europe will be okay. Southern Europe, places such as Italy and Greece, and the Middle East are more under threat because of weaker health systems and weaker monitoring systems. India, especially, could be in real trouble.

“The migration crisis will probably not be helping anything as a lot of people coming over from Syria could be bringing bugs.

“People are getting a sick a lot more often there because of sanitation. Once one bug has got resistance, it can pass it to another.”

Despite European Union regulations aiming to cut back on the unnecessary use of antibiotics, Dr Brown believes it will take more than just legislation to tackle the superbug crisis.

Market forces will need to be compelled to cut usage, perhaps when prompted by a shift in public opinion, he said.

“Those with a vested interest find ways around legislation. So, in addition to public policy we will need also the power of market forces,” he added.

“When the public start demanding meat that has not seen antibiotics – because they understand that the meat may contain antibiotic resistant bacteria – only then will real progress be made. We need education about the threat.”

Government scientists re-examined 24,000 samples of bacteria from food and humans in the UK following the discovery of mcr-1 in China in November and found the gene in just 15 samples.

The Soil Association said the mcr-1 was found in E. coli from two pig farms, in stored E. coli from a pig and in three E. coli samples from two human patients, which were also found to be resistant to other antibiotics.

It was also found in 10 human salmonella infections and in salmonella from a single imported sample of poultry meat. The earliest British positive sample was a salmonella from 2012.

Source The Guardian

NHS nursing levels: Nine in 10 hospitals missing targets

The vast majority of hospitals in England are struggling to recruit enough nurses, figures show.

Some 92% of the 225 acute hospital trusts in England did not manage to run wards with their planned number of nurses during the day in August.

The figures, published by the NHS, show that hospitals in England are falling short of their own targets for levels of safe staffing.

The Department of Health said staffing was a priority.

A spokesman added that 50,000 nurses were currently in training.

Analysis by the Health Service Journal shows average staffing levels across the 225 acute hospital sites in August was worse compared with data for January, when 85% of hospitals missed their staffing targets for nurses working during the day.

The figures also showed 81% of hospitals failed to have enough registered nurses working at night.

Some 79% of hospitals missed their target for registered nurse staffing across both day and night.

‘Long way to go’

Royal College of Nursing chief executive Janet Davies said hospitals were trying to catch up on their staffing levels.

She told BBC Radio 4’s Today programme: “We went through a period of time where we were trying to save money. We cut posts, we didn’t train enough nurses and we’re still feeling the effect of that.

“We’ve a long way to go. We’ve got to catch up on this for some time. But equally, we have to keep the nurses we’ve already got. It’s great to train people, it’s great to bring people in, but our experienced nurses are leaving.

“They’re leaving because they’re overtired – it’s a bit of a vicious circle.”

She said nurses were “exhausted” at the end of their shifts and often having to stay late to provide extra care.

“They do get very concerned because they know what they should be doing for patients and if they can’t, it’s really upsetting,” she added.

Hospitals have been required to publish monthly data on whether they have enough nurses on wards since April 2014.

It followed a report into the Mid Staffordshire NHS Trust, which was heavily criticised for failings of care that may have contributed to unnecessary deaths.

Many hospitals have had to boost their nurse numbers by recruiting overseas, and spending on agency staff has contributed to NHS deficits.

A Department of Health spokesman said: “Staffing is a priority – we’ve put more than 7,600 additional nurses on our wards since May 2010 and there are 50,000 nurses currently in training.

“We know that there are big challenges for hospitals, so we are helping the NHS to employ the staff it needs at a fair price by clamping down on rip-off staffing agencies and identifying billions of pounds of back-office savings so that as much money as possible goes to the front line.”

It comes after a study published in the British Journal of Anaesthesia suggested that fewer patients die after emergency surgery in hospitals that have more doctors and nurses.

The research, looking at data involving nearly 295,000 patients, also found death was more likely following a weekend admission, saying this showed staffing was a factor in the so-called weekend effect.

And a separate Nursing Times survey last week suggested nurses are under so much pressure that they cannot guarantee safe care for their patients.

The survey of nearly 1,000 nurses found eight out of 10 are under more stress at work than they were a year ago, with more than half saying they “rarely” or “never” had either sufficient time or staff to ensure safe care for patients. A third said their ward or team was “always” short-staffed.

Source BBC News

Palliative care given £3.5m boost in new 5-year NHS plan

A new five-year plan to put palliative care at the heart of the NHS in Scotland has been unveiled by ministers in the wake of calls for a major overhaul of the system.

Care for the dying has been given a £3.5 million boost by the Scottish Government to widen access to treatment, regardless of diagnosis, age or background.

The new strategy will see greater training for staff across health and social care on how to support patients and their families. Scotland needs a new openness around death and dying, said health secretary Shona Robison.

She said: “Many people will have gone through the extremely sad process of looking after a loved one towards the end of their lives.

“This will always be a difficult experience, but our health and social care services have a crucial role to play in making it as dignified as possible, and ensuring that the patient’s wishes and needs are taken into account.

“Through this new framework we want to make sure that everyone receives high quality palliative care – tailored to their own symptoms and life circumstances.”

Co-author Professor David Clark, a Wellcome Trust investigator at Glasgow University, published a study last year which indicated one in three people in hospital are in the last year of their lives yet there was little discussion of their dying wishes.

He added: “I am confident it will lead to widespread improvement in one of the most challenging issues of the day – how we care for people at the end of life.”

Campaigners welcomed the commitment to improving end-of-life care in the face of the ageing population and plans to integrate health and social care services next year.

Katherine Crawford, Scotland director of Parkinson’s UK, said: “More than 800 people will die with advanced Parkinson’s in Scotland this year, and we know too many of them will miss out on the care they need as they reach the end of life.

“We hope that this Scottish Government commitment will enable people dying with Parkinson’s to get access to the best possible care wherever they are – in hospitals, care homes or at home.”

Macmillan’s senior development manager, Trisha Hatt said: “Macmillan will work with health and social care services on these recommendations, particularly on the key elements of education and training for staff.

“We need a Cancer Plan for Scotland to take forward these proposals to ensure everyone affected by cancer gets appropriate palliative care if they need it.”

Source The Scotsman

Great grandmother ‘gnawed by rat’ in care home – Health Secretary orders inquiry after seeing shocking photos

HEALTH secretary Jeremy Hunt has ordered an inquiry and spoken of his revulsion after being shown pictures of an elderly woman bitten 50 times by a rat in a care home.

Mr Hunt announced the probe after Whitehall officials raised the case of bedridden Pamela Hudson, who her family say was gnawed by a rodent as she slept at Glen Lodge, in the Heworth area of York.

The 75-year-old great-grandmother, who was from the city, was left covered in blood after the incident on June 19 and was taken to York Hospital, but died three months later at St Catherine’s Nursing Home, in Shipton-by-Beningbrough.

Mr Hunt said: “These pictures are appalling and show the suffering of a vulnerable woman who, along with her family, was stripped of her dignity and badly let down.

“Working across Government, ministers are ordering an investigation which will be launched in the coming days.

Whatever the sort of social care provider, people have a right to expect the highest standards, and that is what we are determined to secure.”

City of York Council, which runs the care home, investigated the incident, but Mrs Hudson’s daughters, Jan Derry and Sallie Wilkinson, said they have received no apology and had been told it will never become clear whether the bites contributed to her death.

Mrs Derry, from Heworth, said: “They are not admitting responsibility. They are not saying how it got in. They are shirking any responsibility.

“Since my mum died, they’ve got pest control at Glen Lodge.

“If you’re living in sheltered accommodation and you’re bed ridden, you need to be looked after.

“When you looked at her arm there was no top level of skin in sections. It was not just a bite, it was as if it had been chewed off.

“As if you were eating a corn on the cob and you gnawed along it.

“It shouldn’t have happened, but it did. We just want people to be aware that things like this can happen.”

“Obviously we are still very distressed about it, but we have come to the end of the road with it,” she said.

“We have done all we can for our mum, but we are not ready to bury her ashes yet.”

Martin Farran, director of adult social care at the council, said: “It is with regret that, despite extensive efforts by professional experts, environmental health and independent inspectors, we have been unable to determine the exact circumstances of how Mrs Hudson’s injuries occurred.

“Our thoughts are with Mrs Hudson’s family, who are understandably distressed by what has happened.”

Source The Northern Echo